Case Study #4
Hemophilia A Virtual Advisory Board with Patient Advocacy
Groups (PAGs)
Key objectives
Identify the unmet need of patient populations in the
Hemophilia
Explore education gaps related to the treatment
of this patient population
Provide feedback on the materials for patients
Agenda
4 Sessions; 10 representatives of PAGs (Global, US, Europe)
01
Session 1 (5 days)
Discussion Forum: advisors provided feedback about current treatment practice, potential barriers for patients
02
Session 2 (2 days)
Provide feedback on materials for patients using platform annotation features
03
Session 3 (3 hours)
Advisors had a brainstorming session using the platform's video conference and meeting board features
04
Session 4 (10 days)
Advisors worked together on wording to be used in patients materials using the platform's online document collaboration features
What influenced the decision?
Secure legal
and compliance
regulations
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Combinations
of discussion forum
with video call
Ability to run
polls/surveys
Ability for advisors to simultaneously
review and share
publications
Results
100%
advisor participation
All advisors provided robust feedback and continued to participate in subsequent discussions
200%
higher level of insights
Feedback received from PAGs was more thoughtful and detailed
91%
Net Promoter Score to use the platform
Advisors and client
appreciated ease of use
and efficiency
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